A person with chronic kidney disease (CKD) must assimilate a lot of information about the disease. Many aspects that you should take into account. Many decisions to make, many changes to assume. For this reason, we put all our knowledge and heart into ensuring that the passage through our association is as peaceful and calm as possible.
First of all, he is welcomed by the EXPERT PATIENT where the patient can explain his case and resolve doubts about the disease, the types of dialysis, types of access, kidney functions or other important doubts such as whether CKD affects your sexuality, your relationship, or whether you will be able to travel or lead the same life as before being diagnosed.
This professional will be the one who refers the multidisciplinary services that the user needs, or demands, according to what was explained in the reception session.
The EXPERT PATIENT is a person with CKD trained to perform these functions since, in addition to being able to understand the situation that users are experiencing, they know how to communicate with them assertively, know the access and operation of health services, understands non-verbal language, motivates self-care, helps adherence to treatment, improves knowledge about the disease, establishes a relationship of trust between the entity and users and promotes prevention of other pathologies associated with CKD.
Vacio
Enlaces de interés:
- ALCER National Federation: alcer.org
- ONT: ont.es
- E.N Nephrology: www.senefro.org
- Valencian Society of Nephrology: svnefrologia.es
- Kidney People: https://personasrenales.org/
- Nefralia: https://www.nefralia.es/
- ALCER Castalia: https://alcercastalia.org/
- Trainsplant: https://www.trainsplant.com/
- Hospital Clinic of Barcelona: https://www.clinicbarcelona .org/assistance/diseases/chronic-kidney-failure
- Free download of the book “Living with kidney failure”: https://www.bubok.es/libros/244163/VIVIR-CON-INSUFICIENCIA-RENAL
- Blog of the nephrology service of the Cruces University Hospital: https://nefrocruces.com/< /li>
- Donate life: https://donavida.es/
App:
- Pukono
- Nephrodiet
Alcer Castalia in networks:
- ALCER Castalia YOUTUBE channel
- Facebook – @asociacionalcercastalia
- Instagram – @alcercastalia
- Twitter – @Alcer_Castalia
Organiza tu salud:
Now we will try to help you, accompany you on the path, provide you with useful resources in your daily life and we will pave the way as much as possible when you only see obstacles.
We plan a medical appointment:
Before leaving home
- Prepare things the day before.
- Make sure where you have to go and at what time.
- Take everything they have told you (documents, evidence…).
- Leave early.
- Bring something to eat and drink in case it gets late.
- Take your next medication intake in case you have to stay longer than planned.
In the waiting room
- Manage your nerves.
- Keep your mind busy (music, reading, conversation…).
In the consultation
- Listen to the medical team.
- Ask what you don’t know.
- Be interested in analytical values and medication changes.
- The medical team is here to help you, maintaining respect is important for good communication.
When leaving the consultation
- Create reminder notes, if necessary, to note what you should bring to the next appointment.
- Write down the date and time of the next appointment in your agenda/calendar/computer.
- Be self-sufficient and independent to manage all the appointment management of your illness.
- Thank the person who accompanied you.
- Smile with satisfaction for having overcome your fears and achieving the challenges set.
Access to health
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If you still do not have the Health Card that gives you access to health in the Valencian Community, you must call your Primary Care Center and make an appointment so they can issue it to you. In this process, they will surely ask you for the Registration Certificate (requested at the Town Hall or assigned Mayor’s Office) and an identification document such as the NIF.
- List of health centers by district
- Request for free choice of doctor or specialized care service
- Directory of Patient Care and Information Services (SAIP)
- Directory of patient associations of Castellón
- Patient Portal< /a>
It must be taken into account that Primary Care Centers are assigned according to the user’s address. You should know which Health Center is assigned to yours.
In the case of migrants, to apply for the Health Card (SIP) you must be registered in the same home for at least three consecutive months. The documentation that will be required will be the same: the Registration Certificate and an identification document such as a passport.
To obtain more specific information, you must make an appointment with the Social Worker of the Health Center to which you belong by area.
If you do not have a place to register, you can contact us so we can help you in the search.We leave you some links of interest:
Access to the Sexual and Reproductive Health Unit
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Currently in the city of Castelló there are three centers dedicated to providing these services. Each center is assigned Primary Care Centers, so the first thing you should know is which Sexual and Reproductive Health Unit your Health Center is assigned to.
- UNITY RAFALAFENA SEXUAL AND REPRODUCTIVE HEALTH
Tel.: 964 39 91 80 - GRAN VÍA SEXUAL AND REPRODUCTIVE HEALTH UNIT
Tel.: 964 71 57 80 - SEXUAL AND REPRODUCTIVE HEALTH UNIT RAVAL UNIVERSITARI
Tel.: 964 46 38 65
Once you know which Unit belongs to you, you must call to make an appointment. In the call you must inform what service you want and, above all, if your query is about an issue that needs urgent attention.- UNITY RAFALAFENA SEXUAL AND REPRODUCTIVE HEALTH
Access to CIPS
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The CIPS is the Information and Prevention Center for HIV and STIs (sexually transmitted infections) of the Ministry of Universal Health and Public Health.
- Care and information about HIV/STI infection
- Prevention measures
- Free and confidential trials
- Advice
They offer:In Castelló they are located at Avda del Mar, 12 and the contact telephone number is 964 39 96 40
For transplant recipients, it will be even more important to carry out adequate SIV/STI prevention since the body is immunosuppressed, that is, with few defenses and the risk of infection is proportionally greater.
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If you want to establish a first contact with the association you can ask for our Patient Expert through these means:
- Phone: 964 22 83 63
- Email: activity@alcercastalia.org
- In person: C/ Enmedio, 22 4º A in Castelló (in this case, please make an appointment through the previous methods)
Contact this service to resolve any questions you may have about Chronic Kidney Disease, its care and treatment.
Where are we?
ALCER Castalia has its headquarters in a central office building, on Enmedio Street, 22 in the city of Castelló de la Plana.
Due to the expansion of services, we are distributed in three offices, from where, in addition to management and coordination, we carry out part of the care, as well as various activities.
Currently, the distribution of the three offices is as follows:
- ALCER 4A Offices - A main office, where management and administration, social care, nutritional care and coordination of activities are located.
- Offices Transport: 4F - An office with two offices: transportation management and psychological care.
- Room multifunctional 2nd E - An office with a large room for holding meetings and activities (workshops, talks...), a warehouse and an office for service.